Posts tagged as

Dystonia

Tyler’s Hope and the Fixel Institute’s partnership for a dystonia cure

By: Grace Huff September marks Dystonia Awareness Month, a time to raise awareness about dystonia, the third most common movement disorder after Parkinson’s disease and essential tremor. For nearly two decades, the Norman Fixel Institute for Neurological Diseases at UF Health has shared this mission through a robust partnership with…

Steps of hope: Samantha’s journey through dystonia

By: Grace Huff Sam with Kelly Foote, MD, co-director of the Fixel Institute When Samantha was seven years old, a familiar fear crept into her family’s home. One moment, she was having fun skipping rope, and then, out of nowhere, her left leg stiffened, twisted, and refused to listen to…

Fixel researchers chart new ground in treating challenging cases of DYT-11

By: Grace Huff A newly published case series led by  Matthew Remz, MD, at the Norman Fixel Institute for Neurological Diseases is reshaping how clinicians approach deep brain stimulation (DBS) in patients with DYT-11, a rare form of myoclonus-dystonia caused by a genetic variant. While DBS is typically highly effective…

Uncovering the Cerebellum’s Role in Dystonia

By: Grace Huff A groundbreaking study from the Norman Fixel Institute for Neurological Diseases at UF Health is shedding new light on the origins of myoclonus-dystonia (DYT11), a rare movement disorder marked by sudden, involuntary muscle jerks and milder dystonia. Led by Yuqing Li, PhD, and his team, the…

September 28, 2024: Shoot To End Neurological Diseases Fundraiser

Want to help end neurological diseases? Then consider this 2nd Annual Clay Shoot, “Shoot to End Neurological Disorders”. This amazing clay shooting event is aimed at benefiting the Norman Fixel Institute for Neurological Diseases. It is brought to you by the Bosshardt Families of Companies and the Reddish +…

8th annual Season of Hope Walk & Run coming on December 8th

The Season of Hope 5k and 15k Run is coming up on December 8th at the Hawthorne Trail. The run starts at 9AM and registration at the event starts at 7:15 AM. You can register for the run, volunteer, donate, or just learn more at the Tyler’s Hope for a…

Blepharospasm Possible Treatments: Botulinum Toxin and Rose-Tinted Glasses

Blepharospasm Possible Treatments: Botox and Rose-Tinted Glasses By: Wissam Deeb, M.D. & Aparna Wagle Shukla, M.D. Blepharospasm is the scientific name given to excessive involuntary forced eye blinking. It is one type of a large group of disorders called dystonias1. Dystonia is abnormal contraction/spasm of the muscles that result in…