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Fixel Newsletter: May 2026
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ALS Awareness Month
ALS Awareness Month is a time to raise awareness of amyotrophic lateral sclerosis and the challenges faced by those living with the disease. At the Fixel Institute, we continue to advance comprehensive care and research for individuals with ALS. We are also proud to share that we have been recently designated an ALS Center of Excellence (CoE), reflecting our commitment to delivering specialized, multidisciplinary care and improving outcomes for our patients. Learn more about our ALS CoE.
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Tourette’s Awareness Month
Tourette Syndrome Awareness Month (May 15 - June 15) is a time to increase understanding, reduce stigma, and highlight the experiences of those living with Tourette syndrome. For more resources, visit our Tourette’s Inspiration Corner, where five adults living with Tourette syndrome share their journeys, insights and encouragement through honest Q&A, personal stories and practical tips.
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Huntington’s Awareness Month
Huntington’s Disease (HD) Awareness Month brings attention to a progressive, inherited condition that affects movement, cognition and behavior and deeply impacts families. At the Fixel Institute, we are dedicated to providing compassionate, comprehensive care while advancing research to better understand the disease. Learn more about our HD CoE.
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PSP Awareness Month
Progressive Supranuclear Palsy (PSP) Awareness Month is a time to raise awareness of this rare neurodegenerative condition and its impact. It is also an opportunity to recognize the individuals living with PSP, as well as the families and caregivers who support them. Learn more about our our PSP CoE.
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Nurse Appreciation Week
National Nurses Week, celebrated May 6–12, is a time to recognize the dedication, compassion and expertise nurses bring to patient care every day. At the Fixel Institute, our nurses play a vital role in supporting patients and ensuring the highest standard of care. We look forward to bringing them together in celebration of their impact and the meaningful difference they make for the individuals and families we serve, and we are grateful for all that they do.
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Clinical Trials Day
On May 20, we not only highlight the vital role clinical trials play in advancing medicine, but also take time to recognize and thank our Fixel research coordinators. Their dedication, attention to detail and commitment to patient care are essential to moving research forward and making new discoveries possible. In recognition of clinical trials day we will offer snacks and light refreshments on 5/20 from 1:30pm-2:30pm in the Fixel Conference Room (1147).
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Speech-Language-Hearing Month
Speech-Language-Hearing Month is a time to raise awareness of communication and hearing disorders and the impact they have on daily life. It is also an opportunity to recognize and celebrate our dedicated speech-language pathologists at the Fixel Institute, who play a vital role in helping patients improve communication, swallowing and overall quality of life. We look forward to bringing them together in celebration of their impact and the meaningful difference they make for the individuals and families we serve.
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2026 Dystonia Think Tank
This past week, we came together with Tyler's Hope for our annual Dystonia Think Tank. This event brings together leading researchers and clinicians to explore cutting-edge scientific discoveries, develop innovative therapeutic strategies and advance interdisciplinary care models, all with the shared goal of one day curing dystonia.
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May 19- Start & Spark
Each month, START & SPARK features a member of our research community leading an engaging, discussion-based session. May’s event will take place on May 19 at 5 p.m., with networking and refreshments beginning at 4:30 p.m. This month’s speaker is Diego Guarin, Ph.D. The session will be held in Conference Room 276 on the second floor of 3011 SW Williston Road.
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September 16-18: DBS Think Tank
The Fixel Institute is hosting the annual Deep Brain Stimulation (DBS) Think Tank, a globally recognized gathering of leading experts in neuromodulation. Since its founding in 2012, this collaborative forum has brought together clinicians, researchers, and engineers from across academia, industry and clinical practice to explore the latest advancements, address emerging ethical considerations, and shape the future of DBS technology.
With a dynamic, discussion-driven agenda, the Think Tank fosters meaningful dialogue on cutting-edge research and novel applications for neurological and psychiatric conditions, including Parkinson’s disease, depression and more. By encouraging open exchange and international collaboration, both in person and virtually, the DBS Think Tank continues to advance innovation and expand the impact of DBS for patients worldwide.
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Fixel Institute member Dr. Adegbola Adesogan has been named a 2025 Fellow of the American Association for the Advancement of Science (AAAS). As the world’s largest general scientific society and publisher of the Science family of journals, AAAS honors individuals for their distinguished contributions to science and society.
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Fixel Institute member and 2025 Catalyst Award recipient Dr. Franchesca Arias has been named the 2026 Provider of the Year by Free Therapy Night (FTN), a clinic dedicated to offering free individual mental health counseling.
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Research & Technology Innovation Incubator Coming Soon...
The second floor of the Fixel Institute Research & Administration building is being transformed into the Research & Technology Innovation Incubator (RTII). A state-of-the-art hub designed to spark collaboration and accelerate discovery in neurological care. Renovations will kick off later this year! During this time, the second floor will be closed to employees, with restrooms and water fountains available on the first floor only. We look forward to sharing updates as the RTII takes shape and ushers in a new era of innovation at the Fixel Institute.
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Regular Metronome, Fractal Metronome, and Music for Parkinson Gait
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Head trauma and environment progression of amyotrophic lateral sclerosis: long-term data from the National ALS Registry
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Exploring Preferences and Priorities in Advanced Parkinson’s Disease: A Discrete Choice Experiment
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Music-based rhythm improves gait in Parkinson's patients
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New Study Reveals Environmental Factors May Speed ALS Progression
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