Saturday, Oct. 25 | 10:00 a.m. to 1:30 p.m.Presented by the University of Florida Health HDSA Center of Excellence Join us for the 2025 Huntington Disease Education Day, a virtual event dedicated to sharing the latest in research, care, and support for individuals and families affected by Huntington’s disease.
By: Mallory Bachmann A furry friend joined families and supporters at the Gainesville Team Hope Walk. Last week, the Norman Fixel Institute for Neurological Diseases joined UF Health colleagues, students, and local families impacted by Huntington’s disease (HD) for the Gainesville Team Hope Walk at Depot Park. The event brought…
By: Grace Huff At the Norman Fixel Institute for Neurological Diseases at UF Health, hope is not just a concept, it’s something being actively built every day for individuals and families living with Huntington’s disease (HD). This rare, inherited neurodegenerative disorder slowly breaks down nerve cells in the brain,…
By: Emily Truscott, MS, LD, RD Huntington’s disease (HD) is a genetic brain disorder that affects movement, behavior, emotions, and thinking skills.1 Over time, these changes can make everyday tasks, such as walking, eating, and talking, more difficult. People with HD often face nutritional challenges, and as their ability to…
Join us for the 2024 Huntington Disease Education Day on Saturday, November 2nd, from 10:00 AM to 1:30 PM, hosted by the University of Florida Health HDSA Center of Excellence. This virtual event will offer valuable insights for patients and caregivers, featuring expert presentations by Dr. Nikolaus McFarland and specialists…
The UF Fixel Institute is a site participating in the GENERATION HD2 trial, sponsored by Roche-Genentech. This trial is studying an investigational drug (Tominersen) designed to target the Huntingin protein. See the following for more information: Contact info: Randy.Foli@neurology.ufl.edu…
Under the direction of Dr. Nikolaus McFarland, the Fixel Institute receives renewal as a Huntington’s Disease Society of America (HDSA) Center of Excellence.
Saturday, September 10, 2022 | 9 A.M. – 1 P.M. Fairfield Inn & Suites3877 SW 37th BlvdGainesville, FL 32608 Join us on Saturday, September 10th for a Huntington’s Disease (HD) Education Day for patients and caregivers! Learn about services, care options, and life management tips, research and therapies for…
The Norman Fixel Institute for Neurological Diseases at UF Health is excited to announce our first Huntington’s Disease Patient-Caregiver Symposium. It will be virtual on February 25 from 1 – 5 PM. To register, email: Latrice.williams@neurology.ufl.edu “Ask the Experts” questions can be emailed in advance to latrice.williams@neurology.ufl.edu. We…
Below is the information for the Walk in Gainesville. Visit this website for more information on other Walks around the country. Team Hope Walk- Gainesville, FL November 20, 2010 Westside Park/Albert Ray Masse Park 1001 NW 34th Street Gainesville, FL 32605 Pre- Registration: 8:30AM Day of…
