By Grace Huff
Tourette Syndrome Awareness Month
This Tourette Awareness Month, the Norman Fixel Institute for Neurological Diseases at UF Health proudly recognizes and supports individuals living with Tourette Syndrome. As a nationally acclaimed Tourette Association Center of Excellence, we are dedicated to advancing care, education, and research for those affected by this complex neurological condition. Our multidisciplinary team provides expert, compassionate care while working to increase understanding and reduce stigma. Join us in spreading awareness and advocating for a future of greater acceptance and innovation in Tourette care.
For Lorenzo Tiozzo, Tourette Awareness Month is more than just a calendar event, it’s a moment to reflect on his journey, share his story, and advocate for others navigating life with Tourette syndrome.
Originally from Venice, Italy, Tiozzo grew up dreaming of studying in the United States. After beginning his college education in Rome, he transferred to the University of Florida to pursue his passion for storytelling. He recently graduated with a degree in Media Production, Management, and Technology, specializing in Film and Television. “Film,” he says, “allows him to build new worlds and connect with others through shared experiences.”
Tiozzo was diagnosed with Tourette syndrome at age 11 after living with tics since the age of five. Growing up in a small, religious town, he faced confusion and stigma. Many people misunderstood his condition, often attributing it to something dark or strange. The isolation took a toll on his mental health, and for years, he kept his diagnosis a secret.
“The first years of high school were a disaster,” he recalls. “I missed a lot of classes due to my condition, and I was very angry with myself because I could not control my body.” Things began to change when he made the decision to speak openly about his condition. “One day, I decided that everything had to change, so I told everyone what was going on. From that moment, I felt completely free.”
That turning point marked the beginning of his journey toward advocacy. Earlier this year, Tiozzo was selected as a Rising Leader with the Tourette Association of America (TAA). As part of the program, he traveled to Washington, D.C., to receive training alongside others with TS who are passionate about raising awareness.
“It helped me a lot to grow,” he says of the experience. “Meeting and sharing my thoughts with other people who live with my same condition made me feel very accepted.” As the only participant from Europe, Tiozzo found the trip especially meaningful. He had the chance to compare healthcare systems, share his perspective, and connect with others who truly understood his experience.
Now, Tiozzo hopes to continue using storytelling, particularly through documentaries, to educate and inspire. He dreams of moving to New York City to work in media and eventually attend graduate school at a top film program.He also finds peace in music. Playing guitar, something he’s done since age 10, gives him a break from his tics and obsessive thoughts.
His message to others living with Tourette syndrome is one of strength and hope: “Never give up. It is very hard sometimes, but when you feel very low, talk with someone close to you, and especially the TAA. They are always there for you.”
Documentary on Lorenzo Tiozzo’s life. Made by Tiozzo.